Dystonia Association of Kentucky

© Going the DYSTance for all dystonia-affected individuals

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      Non-Profit 501(c)(3) Tax Exempt Organization

             

          What is Dystonia?

                   http://www.dystoniaassociation.org/understandingdystonia.htm  

                 "What lies before us, and what lies behind us
             are small matters, compared to what lies within us."
                               -- Ralph Waldo Emerson

 

THE 2008 COUNTDOWN HAS BEGUN . . . . .

 

"2ND ANNUAL DANCING WITH THE KENTUCKY STARS"
BENEFIT GALA & SILENT AUCTION 2008

 


 DYSTONIA AWARENESS DAY

 SATURDAY, JUNE 7, 2008
5:00 P.M.

 THIS EVENT JOINTLY SPONSORED IN CONJUNCTION WITH 
BRAVO! DANCE STUDIOCARE4DYSTONIA AND THE SOMERSET KENTUCKY DYSTONIA GROUP

Galt House Hotel & Suites
140 North Fourth Street 
Louisville, KY 40202 
Tel.:   502.589.5200
Email:
info@galthotel.com
1-800-The-Galt

              

 

To Print Registration Form(s)
Click Here:
    

Solution Graphics

TO REGISTER ONLINE AND RECEIVE THE (ONLINE-ONLY) DISCOUNT
EARLY BIRD SPECIAL
$100 PER PERSON
(SALE ENDS MAY 17, 2008)
 
REGISTER HERE:
 
 
Solution Graphics

Thank You BRAVO! Dance Studio

BRAVO! Dance Studio

 
Alex Ioukhnel, Owner and Instructor with wife Svetlana and son.

Alexander Ioukhnel, Owner of the Bravo Dance Studio, was born in Minsk, Belarus.  He completed from 1985 as a Member of the Belarus Dance Sport Federation.  He met his wife Svetlana in 1990 at the largest Mara Dance Competition in Belarus.  They started to compete together in 1991 and quickly and became  finalists of Belarus National Championships.  They travelled to take lessons from the best coaches in the world including Jukka & Sirpa Haapalainen, Gaynor Fairweather M.B.E., and Mirko Saccani, and other teachers in Belarus, Russia, Lithuania, Hong Kong, Australia, Singapore, and the United States.

Alex and Svetlana came to the U.S. in September of 2003.  When they established Louisville as home, they decided to open their own studio.  Bravo Dance Studio was established in April of 2004.  From its inception, Alex and Svetlana drew students from all over Louisville looking for a higher level of professional instruction and training expertise.  Today, their four year old studio has a staff of eleven, over one hundred and twenty students enrolled  in private lessons, approximately one hundred additional dancers coming for group classes and dance parties, a weekend program for children and teens, and a wedding dance program specializing in custom choreography for the bride and groom.  Bravo Dance Studio offers its students a variety of special opportunities including showcases, syllabus medal examinations, and charity performances at no cost to the students.  Bravo Dance Studio also offers a dancesport training program for those students who wish to compete.                                                                      

BRAVO! Dance Studio
2130 Old Shepherdsville Road
Louisville, Kentucky 40218
Phone:  502-454-4111
Fax:  502-454-4117
Email:  alex@bravodancestudio.com

The studio is easily seen from the intersection of Hikes Lane and Buechel Bypass, directly behind Cashland.

                             

Who Will be Hosting????

 
WAVE-3 TV
News Anchor

 
Mrs. Kentucky 2007
Dr. Denise Yates

The "STARS" That Make it Happen!

                                  

 
Sarah Davasher

Sarah has served as Congressman Ron Lewis' Community Development Coordinator since 2004.  Her position requires her to develop and implement a proactive community and economic development program for the constituents of the 2nd Congressional District.  She earned a Master of Public Administration degree from Western Kentucky University (WKU) in 2006 and completed an undergraduate degree in Political Science/Public Relations in 2004 (also from WKU).  Prior to her employment with Congressman Lewis, she was Sales/Office Manager for American Heritage Homes in Bowling Green, Kentucky where she was "Top Saleswoman of the Year" for each of the four years she was employed by the company.  Sarah is an active member of Lawrenceburg United Methodist Church, and enjoys ballroom dancing in her spare time.  She has taken ballroom dancing classes for about four years, and plans to begin enjoying the competitive aspect of the ballroom in the very near future.                   

                              

 

 

 

 


John Grantz

John is from Louisville, Kentucky, and graduated from the University of Louisville.  Husband to Kirby Adams, former News Anchor, WHAS 11 TV News, and the proud father to two beautiful girls, Elle age 10, and Jordan age 8.  John stays active in his children's activities by coaching their activity teams.  He has been involved with many non-profit fundraisers over the years and the most recent was eight states in eight days for MS.  John is employed at the Public Radio Partnership as Underwriting Marketing Specialists, and is the Owner of Production Simple Concerts and Events LLC., and concert production and special event firm which produces over 50 national concerts and special events a year.  He has been involved in this line of work since doing a radio show with Junior Achievement and promoting  his first national concert at the age of 21.  In his free time he participates in X Terra Triathlons, sails, mountain bikes, and trail runs.


Jo Anna Flaherty

Jo Anna, a lifetime Louisville resident, has been dancing much of her life.  She has nine years of formal dance training in tap, jazz and ballet, and another 1-1/2 years in ballroom.  She also has extensive modeling experience, having been involved in runway, magazine and television events.  Her Modeling engagements have included organizations such as Cosmo and Belterra Resort & Casino, as well as morning television show, website and television commercial appearances for Bravo Dance Studio.  Flaherty attended the University of Louisville where as a "Lady Bird" dance team member, she was often photographed for U of L's ScoreCard sports newsletter.

 


Joe and wife
Carole Liedtke

Joe and Carole Liedtke have taken organized dance lessons for three years at Bravo Dance Studio.  They are social dancers who enjoy the socialization, exercise, challenge of learning new steps and doing an activity together.  Carole was a tap dancer and acrobat with the Louisville based Union Barrack-ades, a USO type troupe, a gymnast, and then a teacher, University of Louisville Gymnastic Coach, International Gymnastic Judge and Mom to their three children.  She has been named to the Hall of Fames for the Kentucky High School Athletic Association, Pleasure Ridge Park High School, Kentucky USA Gymnastics and the University of Louisville Department of Athletics.  Joe was a basketball player from Erie, Pennsylvannia and played for the University of Louisville in the 60's.  He then was a teacher, a basketball/golf coach, and School Administrator with the Jefferson County Board of Education for 38 years.  He has been named to the duPont Manual High School Hall of Fame.  He was also a major college basketball official for 14 years.  Although always enjoying the art of dancing as early as his teen years, Joe's dance background consisted of making up his own steps with the hope that Carole would follow.  Following retirement in 2001 he has endeavored to improve his dancing skills.

Joe and Carole have been married for 41 years this coming August.

 
Lt. Col. Shawn McConnell
and wife Jimi McConnell

Hello from Fort Knox!  I am Lt. Col. Shawn McConnell.  I have been in the Army for over twenty four years as an Aviation Officer.  I began in the Reserves, and flew jets for United Express until the army called me back for permanent Active Duty in 2001.  When that happened, my wife Jimi and I left our home town in central Illinlis with a two and a half yer tour each in Chicago, and in Pennsylvania.  Our Last move was to this area.  My current assignment is as the G1 (personnel officer) of the 11th Aviation Command.  My headquarters is responsible for all Army Reserve aviation units across the country.  Jimi and I are very pleased to be here in the middle of the country where we can enjoy a relaxed living pace, combined with the extensive cultural activities and attractions the Louisville area offers.  My wife invited me to a beginner's class over nineteen years ago.  Several months ago, we were fortunate enough to have found a new and beautiful studio at which to learn, socialize, and have fun!  We must thank our instructor Alex, and the professionals who run Bravo Dance Studio for motivating us to further develop our dancing.  Our enjoyment grows with every lesson.

We'll see you on the dance floor!

 
Drs. Tongalp and
wife Gulgun Tezel with
Alex Ioukhnel, Owner
and Instructor of
BRAVO Dance Studio

Drs. Tongalp and Gulgun Tezel, husband and wife, are both ophthalmologists and faculty members at the University of Louisville Department of Ophthalmology and Visual Sciences.  Besides surgical and medical treatment of vitreoretinal diseases at the Kentucky Lions Eye Center.  Tongalp Tezel has been intensely involved in research focused on the better understanding of mole cular mechanisms and developing innovative treatment modalities for age-related macular degeneration.  Gulgun Tezel is a leading research scientist in the field of glaucoma.  She has been working on the identification of precise pathogenic mechanisms to provide new and effective treatment possibilities for glaucoma patients.

They found a new flavor in life once they started ballroom dancing at Bravo Dance Studio three years ago.  Tezels view the ballroom dancing as the most elegant competitive sport that keeps them active and bonded together.  The couple competed in many regional and national Championships during the last two years and won first places in the 2007 and 2008 National Championships in the American Rhythm, International Latin, and American Smooth dances.


Dr. Y. James Kang

 

 

 

 

Dr. Y. James Kang, Received Ph.D. in Toxicology and Zoology at Iowa State University in 1989, and completed postdoctoral training in Biochemistry and Molecular Biology at Cornell University Medical Center in 1990.  He currently is Professor of Medicine, Pharmacology and Toxicology, Distinguished University Scholar of the University of Louisville, President and CEO of InnoRem, Inc., in Louisville, a member of the Academy of Toxicological Sciences.  He is the Editor-inChief of the Cardiovascular Toxicology journal, the Editor of the book series of Methods in Pharmacology and Toxicology.  He also serves as Associate Editors for Experimental Biology and Medicine journal, the Journal of Toxicological Sciences, and the Journal of Health Science.  Dr. Kang currently is the President of the American Association of Chinese in Toxicology and the President of Metal Toxicology of the Society of Toxicology.  He is the world recognized leader in dietary prevention of cardiovascular disease and is  among the International Who's Who in Professionals and among the top 100 Scientists in 2008 (IBC, Cambridge, England).  His favorite hobby is ballroom and Latin dance and he has been rigorously involved in the BRAVO! Dance Studio in Louisville.

   

 


              

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JOIN OR MAKE A DONATION TODAY! 

             For Details
                click here:

                    CONTACT US

JOIN MY EMAILING LIST!

 BOARD OF DIRECTORS

Sandra Lee Isaacs, President/Founder
Donna Faye Rose, Executive Director
Miren Asumendi, D.O., Vice President
Liz Carlisle, Secretary
Brian L. Hawkins, M.D., Medical Advisor
Michael R. Dobbs, M.D., Medical Advisor
Patrick Schmidt, Attorney at Law, Legal Advisor


                           CALENDAR OF EVENTS         

(Click on any day to find out about upcoming events)

 

  (Click on any day to find out about upcoming events)


CLICK HERE:

http://www.dystoniaassociation.org/contactus.htm

Dr. Oz Radio Interview with Beka Serdans, RN, Founder of Care4Dystonia

OPRAH'S DR. OZ VERIFIED AIR DATE ! ! !                

The segment will air Wednesday at 7am EST on XM Radio Satellite 156. Instructions on gaining access to XM Radio are on the Oprah site.

www.oprah.com

THANKS AGAIN BEKA FOR YOUR DETERMINATION AND COURAGE TO HELP BRING DYSTONIA TO THE FOREFRONT.

 


Dystonia calling Dr. Oz

Verified Air Date

It's just been verified ! The Air Date for " Dystonia calling Dr. Oz " is to air next week on Feb 27, 2008.
The segment will air Wednesday at 7am EST on XM Radio Satellite 156. Instructions on gaining access to XM Radio are on the Oprah site.
Beka Serdans RN has served in the ICU alongside Dr. Oz and talks about how she has battled through Dystonia, a neurological disorder. Dr. Mike Kaplitt, MD, PhD focuses on DBS and gene therapy. Dr. Oz, Lisa and Dr. Roizen also take your calls and answer your questions when it comes to living your best life.

The segment will be re-broadcast the same day at 6pm and 1 am EST. 6 million listeners and growing !

For more info, check the www.oprah.com site and please consider sending Dr. Oz a BIG Thank You.

Celebrate.Time for Dystonia to be Heard.
Beka, RN, MS, NP
beka serdans, RN, MS, NP
440 East 78th Street - Suite 4F - New York, New York 10075

DYSTONIA MEETS OPRAH'S DR. MEHMENT OZ

THANK YOU BEKA SERDANS, RN, MS, NP, AND DR. MEHMENT Oz!  After several attempts from dystonia organizations across the country, including mine, to obtain an interview on the Oprah Winfrey Show, BEKA SERDANS, CEO and Founder of http://www.care4dystonia.org/ has done the impossible.  Beka was able to obtain a radio interview with Oprah's favorite doctor, Mehmet Oz, M.D.  A great big THANK YOU,  Beka for your determination, caring, and dedication, to our cause.  Visit http://www.care4dystonia.org/ for updates.  Dr. Oz, what a great gift you have given to all dystonia-affected individuals who suffer with this debilitating disease every day. 
The powerful gift of education to those who do not know dystonia.  Read more . . . . . 

" The Oz Effect ":   Beka - On Nov 2, 2007, my neurosurgeon, Mike Kaplitt, MD, PhD and I found ourselves sitting in the studios of Oprah and Friends XM, ready to discuss dystonia with Mehmet Oz, MD. The studio was somewhat.....Read More at http://medscapenursing.blogs.com/medscape_nursing/beka/index.html " 

New Policy Change with Kentucky Passport

Due to "least cost alternative," Kentucky Passport has decided to require that Myobloc be used for 9 separate indications.  If you are a new Kentucky Passport patient being injected with botulinum toxin, it will require Myobloc.  If you are a returning patient that is currently getting Botox Type A, you can receive one (1) more injection with Botox Type A, but then be required to be given Myobloc for future injections.

Passport will be sending out a notice regarding this new policy.  If you have any questions, you may either contact Passport directly or call the Dystonia Association of Kentucky at 270-828-5981.

 

The Movement Disorder Society 12th International Congress, Chicago, Illinois, June 22-26, 2008

 

For more informatiion on this upcoming event

click here:
http://www.dystoniaassociation.org/upcomingevents.htm


A DANCE PREVIEW OF
Dr. Miren Asumendi
Dancer/Performer/Instructor

 
click here:
 
http://jasonandsophy.com/Media/ProAmSweetMusicwithMiren2006/tabid/89/Default.aspx

Member:  International Association for Dance Medicine & Science

BRAIN AWARENESS WEEK


March 10-16, 2008

BRAIN AWARENESS WEEK CAMPAIGN

The Dana Alliance created Brain Awareness Week in 1996 to focus worldwide attention on the benefits and progress of brain research.  Held in March, Brain Awareness Week unites the efforts of universities, hospitals, patient advocacy groups, government agencies, service organizations, professional groups, and K-12 schools around the world in an annual celebration of the brain.  Now entering its thirteenth year, the Brain Awareness Week campaign includes more than 2,000 partners in 69 countries and benefits from the participation of key stakeholders such as the Society for Neuroscience and Pilot International, whose broad reach and chapter base have helped expand this grassroots effort into a truly global initiative.

During Brain Awareness Week, campaign partners, as diverse as they are, share one thing in common: the desire to convey the wonders of the brain and nervous system and the far-reaching influences and outcomes of neuroscience research to the public through exciting and innovative events.  These include open houses at neuroscience laboratories, museum exhibits on the brain, lectures on an array of brain-related topics, and classroom workshops where students get a close-up view of real brain specimens.  The Dana Alliance also coordinates its own events in celebration of Brain Awareness Week.  The Alliance participates in the International Brain Bee, an academic competition that tests the neuroscience knowledge of high school students, by organizing regional Brain Bees in New York City and Washington, DC.

To view Brain Week 2007 Photo Album
CLICK HERE:

http://www.dystoniaassociation.org/brainweekphotos.htm

Future Brain Awareness Week Dates:

MARK YOUR CALENDARS:
Upcoming Brain Awareness Week Dates

March 16-22, 2009


BAW 2007 International Calendar - Welcome
BAW 2007 International Calendar - Search Form
BAW 2007 International Calendar - Partner Registration
BAW 2007 International Calendar - Partners
Brain Awareness Week 2007 Official Web site

www.dystoniaassociation.org/meetingsevents.htm

PARTNER LISTING

Brain Awareness Week is a public information campaign created in 1996 by the Dana Alliance for Brain Initiatives to focus public attention on the importance of the brain and brain research. The campaign unites the interests and activities of federal agencies, patient service and advocacy groups, outreach organizations, professional groups, teaching hospitals and universities and private research centers.


To view a listing of campaign partners with links to their Web sites, please select from the list below:

Display: 
Country: 
USA State: 


FEATURED ARTICLES

 

Submitted by 
T
erri Sterling, M.A.
Director/Creativity and Empowerment Coach

INSPIRATION

Go to:

http://www.dystoniaassociation.org/featuredarticles.htm

Visit Terri's website:

http://www.freewebs.com/terris_inspiration

 

LIFE IN MOTION CAMPAIGN NEWS ALERT!

Life in Motion needs our help in
"Going the DYSTance" for all people affected with movement disorders.

Encourage your Congressional Representatives to get involved in Issues as they relate to movement disorders!

Life in Motion
866-546-3136 (Toll Free)

NEW CLINCIAL TRIALS

For more information

click here:

http://www.dystoniaassociation.org/clinicaltrials.htm

ABOUT US

We are a 501(c)(3) Non-Profit Tax-Exempt Organization

This means that anything you donate is 100% tax deductible

You can make a donation (check or money order) to support local group activities, or perhaps you would like to make a donation 
in honor or memory of someone, you can do so at the address listed below.  (Please be sure to make a note of who you are making a
donation in honor or memory of). 

You can also volunteer your time (which is most invaluable) to your local group or Dystonia Association to distribute literature, not
only during awareness week, but all year long, to local medical and lay community leaders and medical professionals offices, schools,
hospitals and pharmacies as well as organizing and/or sponsoring local fundraising events.  

For more information on how you can help or if you need help with planning, organizing, and/or sponsoring a fundraising event,
or find a local support group, please contact us,

Dystonia Association of Kentucky 
270-828-5981

or you can email us at
slipeach@yahoo.com

YOU CAN MAKE A DIFFERENCE ALL YEAR ROUND!

© March 2004-2008 Dystonia Association of Kentucky

FOUNDER OF DYSTONIA ASSOCIATION OF KENTUCKY GETS TOP HONOR

Sandra Lee Isaacs, Leader of the Louisville Kentucky Dystonia Support Group and Founder of the Dystonia Association of Kentucky, has been selected by the Governing Board of Editors of the American Biographical Institute for the prestigious title WOMAN OF THE YEAR - 2006.  The ABI Board continually researches the achievements of men and women from around the world and most are recognized in the Institute's internationally-acclaimed who's who publication.  Sandy was commended for her level of accomplishment that was highlighted in the International Who's Who of Professional and Business Women.  Occasionally, the Board finds other individuals deserving of such top honors as WOMAN OF THE YEAR.  The task of choosing such a group from around the world is overwhelming to say the least.  The Institute is assisted in its research through personal recommendations from the ABI Research Board of Advisors, a panel of 10,000 influential members living in as many as 75 countries.  They also receive nominations for high accolades from business leaders, university staffs, organizational officers, government officials, and media executives from around the world.

THIS SITE IS GREAT!

ST/Dystonia, Inc.
P.O. Box 28
Mukwonago, WI  53149
Tel.:  262-560-9534 (888-445-4588)
Fax:  262-560-9535
Email:
 
info@spasmodictorticollis.org
http://www.spasmodictorticollis.org
Description:  Non-profit support resource for individuals with Torticollis. 
offers a magazine and sponsors symposia.

Check out this site!

 

Healthcare professionals and people living with movement disorders are encouraged to visit the online Life in Motion Resource Center where they will find information and support resources including…

-        downloadable fact sheets about movement disorders

-   database of national movement disorder advocacy groups and foundations

-   downloadable brochures:

o   “Managing Your Life in Motion,” a practical tool to help patients more effectively communicate with their healthcare team

o    “Life in Motion” campaign brochure

To learn more, please visit the Life in Motion Web site at: http://www.life-in-motion.org

Or call the toll-free number:866-LIM-3136 (866-546-3136)

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