Please review each of these studies carefully as you may find that you might be a candidate for one or more of the trials.  Finding qualified participants for clinical trials is essential in providing hope for the future in our efforts to find a cure.  

YOU CAN MAKE A DIFFERENCE

If you meet the critieria, I urge you to participate.  You could be participating in the study that could change the life of all dystonia-affected individuals.

ATTENTION!

THE MERZ CLINICAL TRIALS ARE NOW CLOSED.

This study is now closed.

 

Sponsored Links

Cervical Dystonia Study Volunteers needed for cervical dystonia research. Learn more. www.dystoniastudies.com Spasmodic Torticollis Are you or a family member affected by ST? Need help? We'll support you www.spasmodictorticollis.org Dystonia Find the right answers about dystonia. www.healthline.com

 Do you suffer from uncontrollable muscle spasms in your head, neck, or eyelids?

Merz Pharmaceuticals is seeking individuals to participate in research studies evaluating the safety and effectiveness of an investigational drug for the treatment of cervical dystonia or blepharospasm. The studies are taking place at clinical research centers across the United States.

The Blepharospasm Study is seeking:

• Individuals with a clinical diagnosis of blepharospasm
  who have been treated for the condition

WHAT IS CERVICAL DYSTONIA?

Cervical dystonia is abnormal squeezing and twisting muscle contractions in the head and neck area.

WHAT IS BLEPHAROSPASM?

Blepharospasm is a serious movement disorder in which individuals develop excessive blinking followed by periodic eyelid spasms.

To determine if you may qualify for one of these studies and to locate a study site near you, call:

For Cervical Dystonia Study:
1-800-984-0408

For Blepharospasm Study:
1-800-984-0433

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FUNDING NEWS!
Patients with Cervical or Focal Hand Dystonia Sought

Scientists at the National Institute of Neurological Disorders and Stroke (NINDS) seek people with cervical or focal hand dystonia who are receiving botulinum toxin injections for a study of a medication called amlodipine.  This research study will examine whether amiodipine can improve the effect of botulinum toxin injections for dystonia, which causes abnormal postures and disrupted movements.

The study will be conducted at the National Institutes of Health (NIH) Clinical Center in Bethesda, MD.  All study-related expenses will be paid by the NIH.

For more information, physicians should contact Dr. Barbara Karp, Office of the Clinical Director, NINDS, NIH, Building 10, Room 5S209, 10 Center Drive MSC 1428, Bethesda, MD  20892-1428; telephone:  301-496-0150; fax:  301-480-2973.  Please refer to study number 01-N-147.

Vanderbilt University Medical Center
1500 21st. Avenue South
Suite 3500 Village at Vanderbilt
Nashville, TN  37212

IRBNUMBER:  030029
Genetics of Neurological Disorders

Contact Information
|
Principle Investigator
Stephen Lee
Neurology

Main Contact
Kelly A. Taylor
ktaylor@phg.mc.vanderbilt.edu
Tel.:  615-322-7195
Fax:  615343-8649
1207 17th Avenue South, Suite 100
Nashville, TN  37212

IRBNumber:  050935
Double-Blind Comparison of Botox versus Baclofen for the Treatment of subjects with
upper-limb spasticity - Pilot Study

Contact Information

Principle Investigator
P. David Charles
Neurology
Movement Disorders

Main Contact
Chandler E. Gill
chandler.e.gill@vanderbilt.edu
Tel.:  6-6586
Fax:  6-1229
Neurology
Movement Disorders
MCS 309
3375

IRBNumber:  060155
Humanitarian Device Exemption for Medtronic Activa
Dystonia Therapy

Contact Information

Principle Investigator
Peter E. Konrad
Functional Neurosurgery
Medicine

Main Contact
Melba T. Isom
melba.isom@vanderbilt.edu
Tel.:  3-9822
Fax:  3-7076
Neurological Surgery
Surgical Sciences
T-4224 MCN
Nashville, TN  2380

IRBNumber:  030793
Randomized, Double-Blind, Placebo-controlled, Cross-over Study of
Botulinum Toxin Type A (Botox) for the Treatment of Cervical Dystonia
and Upper Thoracic Muscular Pain.

Contact Information

Principle Investigator
Thomas L. Davis
Neurology
Adult Neurology

Main Contact
Dorothy Shearon
dorothy.shearon@vanderbilt.edu
Tel.:  6-0219
Pager:  615-835-8142
Fax:  6-1229
352 MCS
3375

Generally, you should bring copies of relevant prior medical records, scans (CT, MRI, ultrasound, X-ray), or other reports to your neurology appointment.  For CT or MRI, actual films are preferred to copies, such as CD or paper reports.  You should also bring your current and recent medications.

You may receive a questionnaire either by mail or at the time you check in.  This is in an effort to all information that might relate to your problem.  Please give the answers careful thought and complete the questionnaire fully.

If you are coming for an EMG or other procedure, be prepared to change into a hospital gown.  You also need to change into a gown for an office visit as well.

Finally, please be sure to update your personal and insurance information (if applicable) at the time of check in.  This will ensure that you do not encounter problems if you need to be contacted after your visit.

All of these are subject to each individual doctor's office and their office protocol.  You may be asked for other specific information not included in the above "things to bring."

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