Dystonia Association of Kentucky
© Going the DYSTance for all dystonia-affected individuals
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Non-Profit 501(c)(3) Tax Exempt Organization What is Dystonia? http://www.dystoniaassociation.org/understandingdystonia.htm "What lies before us, and what lies behind us |
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"2ND ANNUAL DANCING WITH THE KENTUCKY STARS"
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DYSTONIA AWARENESS DAY |
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SUNDAY, SEPTEMBER 21, 2008 |
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THIS EVENT JOINTLY SPONSORED IN CONJUNCTION WITH ARTHUR MURRAY DANCE STUDIO |
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The Executive Inn |
To Print Registration Form(s)
Click Here:
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The "STARS" That Make it Happen!
KIRBY ADAMS-GRANTZ
Kirby grew up in a suburb of Chicago. She graduated from Trinity University and worked at KSAT San
Antonio Texas, KING TV Seattle, Washington. She was par tof the tremendously poplar PM Magazine
entertainment shows. She came to Louisville and WHAS 11 in 1993 to anchoar Louisville Tonight Live.
Health and fitness are Kirby's big hobbies. She has run 10, 26-mile marathons, and finished 12th in the
United States Olympic Trials Cycling Trials. She also won a Texas State Triathlon, and Biathlon.
SARAH DAVASHER
Sarah Davasher has served as Congressman Ron Lewis’s Community Development Coordinator since 2004. Her position requires her to develop and implement a proactive community and economic development program for the constituents of the 2nd Congressional District. Sarah earned a Master of Public Administration degree from
JOHN GRANTZ
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BOARD OF DIRECTORS Sandra Lee Isaacs, President/Founder |
CALENDAR OF EVENTS
(Click on any day to find out about upcoming events)
(Click on any day to find out about upcoming events)
Dr. Oz Radio Interview with Beka Serdans, RN, Founder of Care4Dystonia
OPRAH'S DR. OZ VERIFIED AIR DATE ! ! !
The segment will air Wednesday at 7am EST on XM Radio Satellite 156. Instructions on gaining access to XM Radio are on the Oprah site.
THANKS AGAIN BEKA FOR YOUR DETERMINATION AND COURAGE TO HELP BRING DYSTONIA TO THE FOREFRONT.
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| beka serdans, RN, MS, NP
440 East 78th Street - Suite 4F - New York, New York 10075
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DYSTONIA MEETS OPRAH'S DR. MEHMENT OZ
THANK YOU BEKA SERDANS, RN, MS, NP, AND DR. MEHMENT Oz! After several attempts from dystonia organizations across the country, including mine, to obtain an interview on the Oprah Winfrey Show, BEKA SERDANS, CEO and Founder of http://www.care4dystonia.org/ has done the impossible. Beka was able to obtain a radio interview with Oprah's favorite doctor, Mehmet Oz, M.D. A great big THANK YOU, Beka for your determination, caring, and dedication, to our cause. Visit http://www.care4dystonia.org/ for updates. Dr. Oz, what a great gift you have given to all dystonia-affected individuals who suffer with this debilitating disease every day.
The powerful gift of education to those who do not know dystonia. Read more . . . . .
" The Oz Effect ": Beka - On Nov 2, 2007, my neurosurgeon, Mike Kaplitt, MD, PhD and I found ourselves sitting in the studios of Oprah and Friends XM, ready to discuss dystonia with Mehmet Oz, MD. The studio was somewhat.....Read More at http://medscapenursing.blogs.com/medscape_nursing/beka/index.html "
New Policy Change with Kentucky Passport
Due to "least cost alternative," Kentucky Passport has decided to require that Myobloc be used for 9 separate indications. If you are a new Kentucky Passport patient being injected with botulinum toxin, it will require Myobloc. If you are a returning patient that is currently getting Botox Type A, you can receive one (1) more injection with Botox Type A, but then be required to be given Myobloc for future injections.
Passport will be sending out a notice regarding this new policy. If you have any questions, you may either contact Passport directly or call the Dystonia Association of Kentucky at 270-828-5981.
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For more informatiion on this upcoming event
click here:
http://www.dystoniaassociation.org/upcomingevents.htm
A DANCE PREVIEW OF
Dr. Miren Asumendi
Dancer/Performer/Instructor
click here:
http://jasonandsophy.com/Media/ProAmSweetMusicwithMiren2006/tabid/89/Default.aspx
Member: International Association for Dance Medicine & Science
BRAIN AWARENESS WEEK
UPCOMING!
March 16-22, 2009
BRAIN AWARENESS WEEK CAMPAIGN
The Dana Alliance created Brain Awareness Week in 1996 to focus worldwide attention on the benefits and progress of brain research. Held in March, Brain Awareness Week unites the efforts of universities, hospitals, patient advocacy groups, government agencies, service organizations, professional groups, and K-12 schools around the world in an annual celebration of the brain. Now entering its thirteenth year, the Brain Awareness Week campaign includes more than 2,000 partners in 69 countries and benefits from the participation of key stakeholders such as the Society for Neuroscience and Pilot International, whose broad reach and chapter base have helped expand this grassroots effort into a truly global initiative.
During Brain Awareness Week, campaign partners, as diverse as they are, share one thing in common: the desire to convey the wonders of the brain and nervous system and the far-reaching influences and outcomes of neuroscience research to the public through exciting and innovative events. These include open houses at neuroscience laboratories, museum exhibits on the brain, lectures on an array of brain-related topics, and classroom workshops where students get a close-up view of real brain specimens. The Dana Alliance also coordinates its own events in celebration of Brain Awareness Week. The Alliance participates in the International Brain Bee, an academic competition that tests the neuroscience knowledge of high school students, by organizing regional Brain Bees in New York City and Washington, DC.
To view Brain Week 2007 Photo Album
CLICK HERE:
http://www.dystoniaassociation.org/brainweekphotos.htm
Future Brain Awareness Week Dates:
MARK YOUR CALENDARS:
Upcoming Brain Awareness Week Dates
March 16-22, 2009
BAW 2007 International Calendar - Welcome BAW 2007 International Calendar - Search Form BAW 2007 International Calendar - Partner Registration BAW 2007 International Calendar - Partners Brain Awareness Week 2007 Official Web site
www.dystoniaassociation.org/meetingsevents.htm
PARTNER LISTING
Brain Awareness Week is a public information campaign created in 1996 by the Dana Alliance for Brain Initiatives to focus public attention on the importance of the brain and brain research. The campaign unites the interests and activities of federal agencies, patient service and advocacy groups, outreach organizations, professional groups, teaching hospitals and universities and private research centers.
To view a listing of campaign partners with links to their Web sites, please select from the list below:
FEATURED ARTICLES
Submitted by
Terri Sterling, M.A.
Director/Creativity and Empowerment Coach
INSPIRATION
Go to:
http://www.dystoniaassociation.org/featuredarticles.htm
Visit Terri's website:
http://www.freewebs.com/terris_inspiration
LIFE IN MOTION CAMPAIGN NEWS ALERT!
Life in Motion needs our help in
"Going the DYSTance" for all people affected with movement disorders.
Life in Motion
866-546-3136 (Toll Free)
NEW CLINCIAL TRIALS
For more information
click here:
http://www.dystoniaassociation.org/clinicaltrials.htm
ABOUT US
We are a 501(c)(3) Non-Profit Tax-Exempt Organization
This means that anything you donate is 100% tax deductible
You can make a donation (check or money order) to support local group activities, or perhaps you would like to make a donation
in honor or memory of someone, you can do so at the address listed below. (Please be sure to make a note of who you are making a
donation in honor or memory of).
You can also volunteer your time (which is most invaluable) to your local group or Dystonia Association to distribute literature, not
only during awareness week, but all year long, to local medical and lay community leaders and medical professionals offices, schools,
hospitals and pharmacies as well as organizing and/or sponsoring local fundraising events.
For more information on how you can help or if you need help with planning, organizing, and/or sponsoring a fundraising event, Dystonia Association of Kentucky or you can email us at YOU CAN MAKE A DIFFERENCE ALL YEAR ROUND!
or find a local support group, please contact us,
270-828-5981
slipeach@yahoo.com © March 2004-2008 Dystonia Association of Kentucky
FOUNDER OF DYSTONIA ASSOCIATION OF KENTUCKY GETS TOP HONOR
Sandra Lee Isaacs, Leader of the Louisville Kentucky Dystonia Support Group and Founder of the Dystonia Association of Kentucky, has been selected by the Governing Board of Editors of the American Biographical Institute for the prestigious title WOMAN OF THE YEAR - 2006. The ABI Board continually researches the achievements of men and women from around the world and most are recognized in the Institute's internationally-acclaimed who's who publication. Sandy was commended for her level of accomplishment that was highlighted in the International Who's Who of Professional and Business Women. Occasionally, the Board finds other individuals deserving of such top honors as WOMAN OF THE YEAR. The task of choosing such a group from around the world is overwhelming to say the least. The Institute is assisted in its research through personal recommendations from the ABI Research Board of Advisors, a panel of 10,000 influential members living in as many as 75 countries. They also receive nominations for high accolades from business leaders, university staffs, organizational officers, government officials, and media executives from around the world.
THIS SITE IS GREAT!
P.O. Box 28
Mukwonago, WI 53149
Tel.: 262-560-9534 (888-445-4588)
Fax: 262-560-9535
Email: info@spasmodictorticollis.org
http://www.spasmodictorticollis.org
Description: Non-profit support resource for individuals with Torticollis.
offers a magazine and sponsors symposia.
Check out this site!
Healthcare professionals and people living with movement disorders are encouraged to visit the online Life in Motion Resource Center where they will find information and support resources including…
- downloadable fact sheets about movement disorders
- database of national movement disorder advocacy groups and foundations
- downloadable brochures:
o “Managing Your Life in Motion,” a practical tool to help patients more effectively communicate with their healthcare team
o “Life in Motion” campaign brochure
To learn more, please visit the Life in Motion Web site at: http://www.life-in-motion.org
Or call the toll-free number:866-LIM-3136 (866-546-3136)