Dystonia Association of Kentucky (DAK)

RESOURCES & LINKS

As with any serious medical condition, the best person to speak with regarding dystonia and any treatment options is your doctor. There is also support and information available from the following sources:

Going the DYSTance for all dystonia-affected individuals

Dystonia Association of Kentucky
65 Medley Drive
Ekron, Kentucky 40117
Tel.: 270-828-5981
Email: slipeach@yahoo.com
Website: http://www.dystoniaassociation.org

Care4dystonia
Contact: Beka Serdans, RN
http://www.care4dystonia.org

Author of I'm Moving Two and I'm Moving On...Are U ? Available on www.amazon.com

National Institute of Neurological Disorders and Stroke (NINDS)
Office of Scientific and Health Reports
National Institutes of Health
P.O. Box 5801
Bethesda, MD 20824
Tel.: 800-352-9424; 301-496-5751

NINDS Mission

The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.

Dystonia Medical Research Foundation (DMRF)
One East Wacker Drive, Suite 2430
Chicago, IL 60601
Tel.: 800-377-DYST; 312-755-0198
http://www.dystonia-foundation.org

The National Spasmodic Torticollis Association
NSTA
P.O. Box 873
Royal Oak, MI 48068-0873
Tel.: 800-487-8385
Website: http://www.torticollis.org

ST/Dystonia, Inc.
P.O. Box 28
Mukwonago, WI 53149
Tel.: 262-560-9534 (888-445-4588)
Fax: 262-560-9535
Email: info@spasmodictorticollis.org
http://www.spasmodictorticollis.org
Description: Non-profit support resource for individuals with Torticollis. Offers a magazine and sponsors symposia.

National Spasmodic Dysphonia Association
Tel.: 800-795-NSDA
Website: http://www.dysphonia.org

Benign Essential Blepharospasm Research Foundation, Inc.
P.O. Box 12468
Beaumont, TX 77726-2468
Tel.: 409-832-0788
Website: http://www.blepharospasm.org

Musicians with Dystonia
Website: http://www.dystonia-foundation.org/info/group.asp?id=4

WE MOVE
Worldwide Education and Awareness
for Movement Disorders
Tel.: 212-875-8312
Website: http://www.wemove.org

Society for Neuroscience
11 Dupont Circle, NW, Suite 500
Washington, DC 20036
Tel.: 202-462-6688
Website: http://capwiz.com/sfn/home
Website: www.sfn.org

Allergan, Inc.
BOTOX
2525 Dupont Drive, T2-6B
Irvine, CA 92715
Website: http://www.allergan.com

Solstice Neurosciences, Inc.
MYOBLOC
Website: http://www.solsticeneuro.com
Website: www.myobloc.com

Solstice Neurosciences, Inc. is a specialty biopharmaceutical company focused
on the development, manufacturing, sales and marketing of specialty biopharma-
ceutical products. Solstice’s first product, Myobloc^®/NeuroBloc^® (Botulinum
Toxin Type B) Injectable Solution, represents the only botulinum toxin type B
currently available to physicians and patients worldwide.

Linda Furiate
http://www.portraitsindetermination.com

Linda is a noted teacher, philosopher, author, coach, mentor and talk show host inspiring others to conquer their own adversity and to discover their true self. She has also trained under Louise Hay to become a prosperity workshop facilitator. Linda offers Coaching/Mentoring Services for people who have suffered adversity and wish to overcome this portion of their journey to find real happiness and prosperity.

Currently Reading:
101 Simple Suggestions and Quotations to Express Compassion and Empathy : (An aid in healing ourselves and the world)
Linda M. Furiate
see related

nda

Medtronic
710 Medtronic Parkway
Minneapolis, MN 55432-5604
Tel.: 763-505-5000
Fax: 763-505-1000
Toll-free: 1-800-328-0810
Website:

Click here:

www.medtronic.com
www.itbtherapy.com

For additional information about ITB Therapy
visit: http://www.spasticity.com

DBS Therapy for Dystonia

www.professional.medtronic.com - Deep brain stimulation
may provide relief to dystonia patients.

A Worldwide Service Organization

In North Carolina, children who have spent their lives dealing with developmental disabilities use special surf wheelchairs to feel ocean waters lap their feet for the first time ever...

In Japan, disabled teenagers learn to play traditional Haiko drums, and feel the thrill of performing in public...

...all thanks to the combined efforts of the Pilot International Foundation (PIF) and Pilot Clubs around the world.

The Pilot International Foundation was established in 1975 to support the community-based work of Pilot Clubs by promoting the awareness and prevention of brain-related disorders, and improving the lives of those affected by such disorders, through education, volunteerism, financial support and research.